Making social media about social inclusion

By Debbie Hall, direct support professional

Which of these sites do you have an account for or have at least used recently? Now what about the individuals you support? 

My guess is, on average, that there is a difference. Why is that?

Whether you like it or not, social media is how we stay connected. We all use it on a daily basis in some shape or form. We keep updated on our friends and family by scrolling through pictures and status messages on Facebook, Twitter, or Instagram. We “talk” to others via text on Google+, Messenger, or Yahoo. We discover new things we would like to try by searching Pinterest, YouTube or Vimeo. Communication, connection, and discovering new things that we like are how we stay and become included with others. We choose to use social media as one of the mediums to do this. So, why are we not utilizing this world with those we support?

But, what would this look like? Here are some ideas on what you can do to help those you support utilize social media platforms:

• Help create a list of people that are important and help to keep in contact via email or messenger.
• Help post pictures and status updates about what is going on in their lives to share while having important conversations about what might not be appropriate to let others know.
• Make a list of hobbies and interests and help/show how to scroll through sites like YouTube and Pinterest to find ways to learn new skills or improve on them.
• Most of all, be creative and individual! Don’t be afraid to use these tools!

“In Social Media the “squeaky wheel” gets the oil. You have to put yourself out there, to find people who will relate or even debate with you, depending on what you are looking for.” - Jessica Northey

The importance of sharing ordinary places

By Marisa Geitner, president and C.E.O.

"Without intentional activity people with disabilities are more likely to belong to a smaller world, engage in a smaller world, and be in devalued roles, more likely to have fewer choices."- John O'Brien

Great things come when we share ordinary places.

As disability support services have evolved, models have been created in a manner that separates individuals from the general community, making it necessary for support providers to consistently be seeking ways that help one gain experience "in the community."  This has also created an unintended consequence of members of the general community assuming that since individuals have paid support, they themselves need not be concerned about how to welcome those with disabilities into their community circles. They might also assume that those with support needs require separation from community in order to be successful.

Having a home within a community or attending a program within a community has been a wonderful step toward full inclusion. Our next step is simply to share ordinary places. That may mean establishing some patterns that are frequent enough it might allow for new relationships to develop. Some may join others at the town diner for the Friday night fish fry or volunteer consistently for events offered through their church or local fire department. How about connecting with a local walking club and developing relationships as you enjoy exercise and fresh air?  Do you enjoy coffee while people watching every Monday at the local coffee shop?  Ever thought about ushering at a local theater? 

Seek experiences you'll enjoy. And remember, predictability and frequency increase the likelihood that new relationships will develop by sharing time in ordinary places. It is true and lasting relationships that combat isolation and exclusion.

Find some time to extend yourself to enjoy the community that you are a part of today. 

Offering a personal invitation to community

By Marisa Geitner, president and C.E.O.

Relationships don't expand without first sharing common places. Whether those places are physical spaces, common interests or mutual conversations, they are necessary for connection.

I'm sure we've all put ourselves in situations where we attended an event out of obligation but discovered we really enjoyed ourselves. You can see the growth and enjoyment that came from participating. I hope we all have many stories of successful relationships that develop when we take a step and enter into a new experiences. Yeah us!  

But what about the experiences we shy away from?  Have we examined the lost opportunity in order to challenge ourselves to move forward?  Let's consider what it might have taken to step into a new experience when we were uncertain.  Let's consider the difference between an opportunity that welcomed us versus an opportunity where we were invited, personally, to participate.

Recently, while attending the Summer Institute on Theology and Disability, I had the opportunity to hear Eric Carter share the results of some research he and his team had recently conducted at the Kennedy Center at Vanderbilt University.  This research found that 52% of adults impacted by intellectual and developmental disabilities do not belong to a faith community.  Perhaps this is explained by the fact that 56% of parents state that faith communities lack the necessary support to include their child. When the researchers turned their attention to the faith communities, they found only 18% of churches offered any kind of intentional focus to invite those with disabilities.

Certainly our faith communities intend to be welcoming, but maybe this is where we begin to see that offering a welcoming environment just simply isn't enough. You see, uncertainty is a barrier for us all. In order to take that step and be included when welcomed we might need an intentional, thoughtful invitation. Invitations are personal while welcomes are general.  Particularly for those who have had past experiences that have not been positive, they might need an extended hand in order to take that next step.

While I believe our communities of worship should be positioned to best model a personal, meaningful invitation, it doesn't stop there.  If we're to take the next steps toward full community inclusion, truly creating experiences for us all to share common places, we must challenge ourselves beyond general welcoming.  It's time for us to extend thoughtful, personal invitations. Who will you be inviting today to join you in a new experience?

Follow directions -- or drive change

 By Marisa Geitner, president and C.E.O.

As I continue to study and experience the Reggio Emilia-inspired philosophy as it is lived out through our Expressive Beginnings Child Care, I am amazed at how in step it is with our community-wide conversation on full citizenship. With interactions structured to provoke questions, learning becomes individualized and self directed, even in shared learning environments. This allows children, as they develop their sense of self, to also understand their contribution and belonging within any new experience. A Reggio-inspired teacher might challenge others by ensuring that the children spend much more time asking questions than they do following directions. 

How do we begin to enrich our adult conversations in the same way Reggio-inspired teachers enrich the conversation with youth? By showing an interest in others we are in conversation with and asking another question, opening them up to their unique story and their unique contribution. As we improve our ability to truly listen, it allows us the opportunity to engage in conversation differently.

It is in these enriched conversations that we'll advance by:
Seeking to listen, understand and respect the perspective of others.
Trusting one another to set aside the judgment that can limit our ability as human beings to dig into the tough stuff.

Let's work hard to have the kind of conversations that welcome others into the struggle that limits justice, freedom and the rights of others. Superficial conversations lead to superficial solutions, enriched conversations lead to true and just social change. It can't be achieved alone. It takes the work of a full community.

Where do you see the need for social change? How are you welcoming others into conversations that lead change? 

Advocacy at the right time, not all the time

By Andrey Khabursky, residence manager

Advocacy. What is it? What's it look like, feel like, and what makes it so significant and powerful?

Advocacy is the power to change the life of a person, a culture, a people.

Advocacy, whether spoken or unspoken is the driving force that brings us alongside our best intentions, and many times brings them to reality.

A few weeks ago "advocacy" became a redefined term for me. One of the gentlemen who live in a home supported by Heritage Christian staff had gone into the hospital, and after 5 days and 4 nights, he was ready to come home. The team at large stood on the fence, not comfortable to make a decision either way. I struggled through the channels of communication, hierarchy, and positional authority in order to take on the critical role of being an advocate in a new, very defined role. Much of the team looked at his past history, which is important, but they didn’t look at his current condition and honor what he wanted. We call this the “what ifs.” These what ifs could keep all of us from living a fulfilled and meaningful life, and moreover, keep us from offering the opportunity for others to do the same. As his housemates welcomed him home, he just "lit up" and a sense of refreshment washed over him.

So whether we're "thinking outside the box," or standing our ground on behalf of those we serve and support, we should always take their best interest into account when we become "their voice" for that moment. Like for you and I, there have been moments when we had someone come alongside us, and speak up for us, and make things happen. It's OK to be their voice, but may it be just for a moment... long enough to bring about change, build confidence and leave a lasting impact. Many times we want to be the voice of advocacy, not only at the right times, but all the time. We need to constantly reevaluate to see if we’ve taken their voice away or if we are being that push to get them going. Let’s think of their voice as a bobsled… many times, those we support only need that push to really get moving and the rest is driven by them. Often for our comfort, we long to hold on to that bobsled as it flies through the course at 70mph, and continue to be an advocate, not realizing, our advocacy was accomplished long ago.

Advocacy may be just the simple act of standing with another; unity.

Advocacy done right is empowering.

Listening for social change

By Marisa Geitner, president and C.E.O

Listening is an art, and if we aren't careful it might become a lost art.  

I believe most people want to be better listeners, so how do we improve?  

Daily discipline. Conversation by conversation.  

First, slow down. Take a breath. Look at the person (see his eyes and mouth). Focus.  Next really pay attention, don't allow yourself to be distracted by the people or activity that surrounds you. When it is your turn to speak (there is never a good reason to interrupt) ask clarifying questions. This is not your chance to persuade or convince – you are the listener.  Finally, validate what you've heard and validate the person who has shared it. Thank her for sharing her time and thinking with you.

We know listening is an important skill for our personal development but it is also essential for social change. You see, social change requires congruent vision, collaboration and civility. Like any strong relationship it requires respect and mutual contribution and concession.  A stunning percentage of people when asked "When do you most feel respected?" will answer in some form or fashion "when I am heard."

We are hardwired as social beings so that belonging and contributing are important to us all. That's why most people prefer to talk to great listeners, not great speakers.

Collective impact will stall and social change will lag when we don't listen and hear one another, when we don't demonstrate value and respect to all as contributors.

Grilling and growing independence

Lewis Hopkins is an associate director of program development - residential. Today he shares with us some things he noticed as he drove past a home where he knew staff supported people – and how one small change influenced bigger change.

Sometimes it is easier to see things that may need to change, from the outside, and I had the opportunity to look into the window. I noticed that when I drove by, it was always staff members who were outside grilling, not the people who lived there. It seemed like an easy fix toward giving ownership back to the folks who lived there.  I have to be honest. I did not know that it was going to lead to everything that came after that.

It took a year or so and a lot of work from everyone involved – including nurses, the quality assistance department, support from my supervisors, dietitians, staff, families and the individuals.  In the beginning there was a lot of push back maybe due to fear or just change, or maybe both, but with each hurdle we got over, the confidence grew with all involved and it began to open more doors for everyone. Before you knew it people where doing more and more on their own and it became a challenge among each other. The families saw the happiness that independence could bring to someone and they started looking at things differently.

It was great to be part of a movement like this and to see the hard work and dedication pay off.  But, at the end of the day, the most important thing that came out of this was to see voices being heard and people taking ownership of their own lives. And to think it all came from a grill.  

If someone had asked me what I was going to focus on, and the answer had been the grill, some people may have looked at me like I was crazy. So the next time someone asks you what your plan is, it does not have to be this huge mind-blowing idea, it can be something small that turns out to be much more than just a grill.